Working with the Global Treehouse Foundation to co-design a resource with and for children’s palliative care providers
Project aims:
The Global Treehouse Foundation is a small charity whose vision is that every child, regardless of their health condition, receives the palliative care support they need to live life to the fullest. Their mission is to catalyse change, scale investments, and build a supportive community to advance paediatric palliative care globally.
The Global Treehouse Foundation wanted to create a tool to help support global children’s palliative care providers to demonstrate their service impact, gather insights around the current service experience from children, family and staff so that they know what was working well and what could be improved about thier palliative care services.
Co-designing and prototyping the resource with children’s palliative care providers:
We created an initial prototype of the tool based on desk research, a few conversations with children palliative care specialists and some early work from the Global Treehouse Foundation. We then ran a round of co-design interviews and workshops with children’s palliative care providers around the world to tweak the tool and kept making iterations.
The co-design process included different perspectives from various providers, such as community-based programmes, clinics, hospitals, hospices and advocacy groups. Recognising the multidisciplinary nature of palliative care, the process involved professionals in various roles, including nurses, doctors, psychologists, social workers, child life specialists, researchers, educators, data and information system managers, health professionals and palliative care leaders.
How the tool works:
The tool has 10 core sections ranging from “The needs and feedback of children and families” to “inventory and supplies”. Each section has a table of suggested metrics or things you could measure to understand what you might be able to improve about your children’s palliative care service and then there is also a page of resources and case studies for each section also to help providers learn from what other providers are doing around the world.
You can use the tool by choosing a section and then going through the tool and marking with the drop down functionality if its something you are doing well, doing but could improve, something you want to improve or if its a future priority.
Getting the tool into the hands of children palliative care providers around the world:
Once a first draft of the tool was ready to be shared we sent it out to everyone we had involved in the process and asked them to share it wider.
Inclusively has also been supporting the Global Treehouse Foundation to run a few workshops with some children’s palliative care providers like Noahs Ark Children’s Hospice to help them get started to use the tool.
The feedback has been so positive around the world!
The outcomes and impact:
The tool is now live and being used around the world, there has been great uptake and a really positive response!
You can download the tool here.
A big thanks to the Global Treehouse Foundation team and all of the childrens palliative care providers around the world who supported us with this project!
Client: Global Treehouse Foundation
Services: Service Design, User Research, Design Research, Graphic Design
Team: Charley Pothecary, Kat Jennings